Developmental Care for Children with Congenital Heart Disease
The Heart Center Neurodevelopmental Program (HCNP) brings together a team of specialist from different areas to provide developmental care for patients and families living with congenital heart disease. This program is jointly run by the Primary Children’s Heart Center and the Ìð¹ÏÊÓƵ Developmental Assessment Clinics.
Our team includes specialists from these areas:
- Cardiology
- Developmental pediatrics
- Psychology
- Physical therapy
- Occupational therapy
- Speech and language pathology
- Registered nurses and medical assistants
Our team provides developmental assessments at four key stages of your Ìð¹ÏÊÓƵ’s age:
- Six to 12 months
- Eighteen to 36 months
- Four to six years
- Eight to 12 years
We’ll contact you before your visit to complete some checklists and paperwork. After the evaluation, we’ll summarize the results. Then we’ll share them with your Ìð¹ÏÊÓƵ’s pediatrician and/or cardiologist—and with you.
If your Ìð¹ÏÊÓƵ is in the hospital as a newborn, our developmental care team provides formal testing there too. We also provide one-on-one consultations and recommendations specifically for infants.
Partnering With Primary Care Providers (PCP)s
Providers at the HCNP do not replace your Ìð¹ÏÊÓƵ’s primary care provider (PCP). We work in partnership with your Ìð¹ÏÊÓƵ’s PCP. We share all the documentation from our assessments with your Ìð¹ÏÊÓƵ’s PCP so that we can work as a team to support your Ìð¹ÏÊÓƵ’s development.
Why Is My Child Being Seen in the HCNP Clinic?
The American Heart Association (AHA) recommends that all high-risk Ìð¹ÏÊÓƵren with congenital heart disease have neurodevelopmental evaluations. HCNP offers evaluations for infants in the hospital. We also offer clinic visits for Ìð¹ÏÊÓƵren between six months and 13 years.
High-risk Ìð¹ÏÊÓƵren are those with:
- cyanotic heart disease,
- open heart surgery as a newborn, or
- other risk factors associated with congenital heart disease.
Scheduling an Appointment for Your Child
Your Ìð¹ÏÊÓƵ will be automatically referred to the HCNP Clinic. The surgical team present at the time of your baby’s first surgery will do this. We also accept referrals at any time from your Ìð¹ÏÊÓƵ’s cardiologist or cardiology team.
If you feel your Ìð¹ÏÊÓƵ meets criteria and has not been referred, please contact your Ìð¹ÏÊÓƵ’s cardiologist or PCP. They can refer your Ìð¹ÏÊÓƵ to the HCNP by using our secured FAX at 801-585-2209 or through their (EPIC or iCentra) electronic medical record.
School Assessments
If your Ìð¹ÏÊÓƵ has previously received testing, we strongly recommend that you share the results with the HCNP before your visit. This is vital for many reasons, the biggest being that we do not want to repeat testing that has already been done with your Ìð¹ÏÊÓƵ.
Additionally, the testing information can allow the providers at the HCNP to fine tune the assessment to your Ìð¹ÏÊÓƵ's profile for a better overall assessment. Send any previous testing results securely by fax or email to the HCNP:
Fax: 801-585-2209
Email: udac@hsc.utah.edu
Provider Recommendations
The providers at the HCNP will make recommendations based on the results of the clinic evaluations. You can access developmental services in a variety of ways; they are tailored to each Ìð¹ÏÊÓƵ and family's needs.
We can also provide you with resources in your community ranging from parenting classes to adaptive sports teams. Finally, if your Ìð¹ÏÊÓƵ needs comprehensive outpatient therapy, we will make the appropriate referrals and help you to access those services.
Cost for Program Ìð¹ÏÊÓƵ
Although we will bill your insurance company (if you have insurance or Medicaid), you will never receive a bill for these services. There are no out of pocket expenses for these services.
We are very committed to the developmental outcomes of Ìð¹ÏÊÓƵren with congenital heart disease and provide these services regardless of insurance coverage, or lack of it.
Find a Heart Center Specialist
A Relationship Created for the Best Pediatric Care
For pediatric specialty care, Intermountain Children's Ìð¹ÏÊÓƵ is affiliated with Ìð¹ÏÊÓƵ of Utah Ìð¹ÏÊÓƵ. U of U Ìð¹ÏÊÓƵ physicians see patients at , , and other locations throughout the Salt Lake City valley.
It's a shared mission of providing health care, education, and research. It comes to life through collaboration on clinical care, research, and educational programs.
Primary Children's Hospital operates as the main pediatric facility for the U of U Ìð¹ÏÊÓƵ system, providing care in more than 60 medical and surgical specialties such as surgery, oncology, cardiology, orthopedics, and others. Most of the providers at Primary Children's Hospital are faculty members at U of U Ìð¹ÏÊÓƵ.
This partnership delivers care to advance pediatric medicine while educating future generations of health care professionals.
Questions? Contact Us
Please, do not hesitate to call the HCNP with any questions. Andrea Smith is a cardiology nurse and the HCNP coordinator. Phone her at at 801-213-1594 or email at andrea.smith@hsc.utah.edu.